Thursday, March 7, 2013

I spoke to soon

Yesterday at 7 in the morning I posted on Facebook how excited we were the time had come to take Jemma home. My aunt Laura took the carseat By the hospital so they could do the carseat challenge. It is a test to measure a baby's ability to handle the stress of being in a carseat. Believe it or not a lot of babies don't pass it and end up stay a little longer. Jade was so excited she took it down to the NICU wondering when can we start. Unfortunately we won't anytime soon the horrors stories of the NICU roller coaster ride have just become our own. We are on a downward spiral upside down hands in the air screaming at the top of lungs stop this ride please when is this going to stop,

Jemma has been diagnosed with a very severe pulmonary stenosis. This is a birth defect of of her pulmonary valve inside of her heart. They are moving her to another hospital to do a procedure on her heart. They hope to be able to correct it with a balloon an catheterization however the cardiologist believes it is to severe to be corrected by this method. We are possibly looking at open heart surgery. The transfer should be happening this morning and as soon as we are updated on when all of this will happen I will let you know.

The thing that is keeping us sane is this saying by Shakespeare


Tuesday, March 5, 2013

Drum roll please....the news we have all been waiting for!!!

Jemma gets to come home on Friday march 8th. And I will say it again SHE IS FIERCE! Her gestational age would be 35 weeks. Her NICU stay will just be 3 days short of 8 weeks. So yes that means she is almost 2 months old. She weighs 4lbs 12oz, can you believe it? Time flies!

So all of this week they have been D/C all her lines. She has been eating all her meals from a bottle for a week now and her NG tube got removed last week. She has also been off of O2 for almost a week. And they believe she is ready. We are so thankful to God for this miracle baby and all the strength he has givin her!
Jemma Jean free of all her tubing 3/3/13